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Table of Contents
Active Telehealth Projects
National Master Patient Index (MPI)
Microsoft's and Sequoia's are involved in a project "that would link patient records throughout the country. The Index will correlate and cross-reference computerized patient records from different health care organizations while matching key identifiers with a high degree of accuracy, all without the need for attendant human operators." For more information see:
Los Angeles Teleopthalmology Program
NLM announced the award of 19 multi-year telemedicine projects intended to serve as models for: a) Evaluating the impact of telemedicine on cost, quality, and access to health care; b) Assessing various approaches to ensuring the confidentiality of health data transmitted via electronic networks; c) Testing emerging health data standards. The projects funded affect rural, inner-city, and suburban areas. They evaluate the use of telemedicine in a wide variety of settings. Summaries for these projects and links to their web sites are available. For additional information on the NLM National Telemedicine Initiative see:
Provide health care to underserved center-city elderly and offshore islanders in California. The University of Southern California's Medical faculty will treat multiple underserved communities ranging from North Hollywood's center-city elderly and minorities to the relatively isolated offshore island of Catalina via state-of-the-art telemedicine systems. Patients will be cared for in their own locale by means of PacBell network transmittal of USC Emergency medicine support instead of traveling to distant specialists (e.g., By helicopter or board from Catalina). Project Web Site:
Support rural primary care physicians consulting with remote specialists in West Virginia. A consortium of nine institutions led by the Concurrent Engineering Research Center of the West Virginia University will demonstrate the viability of secure clinical telemedicine on public telecommunication networks and show that its adoption as an integral part of an overall health care plan can result in cost savings and improved access to quality health care for rural populations. Rural primary care physicians, physicians' assistants, and other authorized users will have secure access to electronic medical records and patient monitor data, and be able to confer with collaborating health care providers at a distance in the treatment of patients.
The STARBRIGHT Foundation was formed in 1991 between the worlds of pediatric healthcare, entertainment and new technology. Its goal is to create, develop and research projects that redefine a child’s experience of being seriously ill. Each project is designed to address specific healthcare challenges and is evaluated by children and STARBRIGHT’s team of collaborators. The STARBRIGHT Foundation’s mission is to never forget that behind every childhood illness is a child. In addition to the beta test hospitals, STARBRIGHT World is currently available at The Children’s Hospital, Denver; Children’s Mercy Hospital, Kansas City, Missouri; Doernbecher Children’s Hospital, Portland, Oregon; and Primary Children’s Medical Center, Salt Lake City, Utah. For more information on STARBRIGHT, visit the website at
http://www.starbright.org or call 1-800-315-2580.
If you have a project you would like included or reviewed in the next issue please e-mail us: firstname.lastname@example.org
POLITICS & POLICY
HCFA--100% Parity for Psychologists
The Health Care Financing Administration is now working to identify eligible areas, and over the next year will be drafting regulations covering implementation: http://www.atmeda.org
The National Council of State Boards of Nursing is now looking at a mutual recognition model of nursing licensure in order to move us forward into the next century with rules that work, considering the growth in telehealth. You can check out their statements at: http://www.ncsbn.org
THE TELECOMMUNICATIONS ACT OF 1996
Under the new legislation, universal service, previously designated to ensure affordable access for consumers to basic telephone service, has been expanded to include an "E-Rate", or education rate, for schools and libraries. As part of the E-Rate, telecommunications carriers must now offer their lowest corresponding rates to elementary and secondary schools and to public libraries. In addition, schools and libraries will be allowed additional 20-90 percent discounts on top of the lowest corresponding rate for telecommunications services, Internet access and internal connections.
http://www.fundsforlearning.com , and http://www.eratehotline.org
1998 HEALTH CARE BUDGET: HISTORIC HEALTH INVESTMENTS IN CRITICAL AREAS
November 13, 1997, the President signed into law the Labor-HHS-Education Appropriations bill. This important bill expands the nation's biomedical research investment by nearly $1 billion; extends AIDS prevention efforts and treatments to more Americans; takes new steps to prevent chronic and environmental diseases; improves health care in underserved rural areas; and enhances efforts to prevent and control infectious diseases. The Labor-HHS bill increases funding for the National Institutes of Health (NIH) by over $900 million, for a total of $13.6 billion for NIH in FY 1998.
Home-Based, Video counseling for Families of Rural Teens with Epilepsy:
Program Rationale and Objectives
Robert Glueckauf, Jeff Whitton, Janet Kain, Susan Vogelgesang, Mike Hudson, and Jeff Baxter
Purdue School of Science
Indiana University Purdue University Indianapolis
B. Garg and M. Herndon Indiana University School of Medicine
Adolescents with epilepsy are likely to confront a variety of psychosocial, educational, and pharmacological difficulties in coping with their medical condition. Recent studies have shown that adolescents with seizure disorders are at greater risk for developing psychiatric disturbances (e.g., depression and conduct disorders) and school-related problems than their healthy peers and other teens with chronic physical disabilities (e.g., Austin, 1991). Although parent advocacy and professional epilepsy groups have called for the development of counseling programs to address these difficulties, there continues to be a substantial gap between consumer needs and service delivery.
The most damaging effect of this shortage of counseling services can be found in rural areas, where local resources are limited and transportation to major medical centers pose severe obstacles to adequate health care. Counseling services for at-risk teens with epilepsy and their parents in rural America is at best inadequate, and in most cases, nonexistent. Fortunately, however, two recent scientific developments have enhanced our prospects for meeting the counseling needs of this underserved population. The first important development is the emergence of empirically-based, issue-specific family counseling models. These approaches "tailor" intervention strategies to the specific issues of families and couples. Glueckauf and colleagues' issue-specific counseling model (e.g., Glueckauf et al., 1992; Long, Glueckauf, & Rasmussen, in press), in particular, has shown considerable promise in ameliorating the psychosocial problems of teens and young adults with epilepsy and their families. The second development is the advent of new communication technologies that facilitate long distance, audiovisual communication. Two-way, audiovisual communication between families in rural areas and counselors located in major metropolitan cities is now possible through a combination of PC technology and rural, 56 Switch service.
The primary purpose of our three-year, National Institute on Disability and Rehabilitation Research (NIDRR; Glueckauf, 1996) project is to evaluate the impact of "issue-specific videocounseling" on the psychosocial and educational functioning of rural teens with epilepsy and their parents.
Seventy-five families, consisting of 75 at-risk adolescents with epilepsy, ages 12 to 19, and their parents from rural Indiana, Michigan, Ohio, Kentucky, and Illinois will be randomly assigned to 1 of 3 intervention conditions: (a) home-based (HB) family videocounseling (n = 25), (b) office-based family counseling (n = 25), and a waiting list (n = 25). In addition, families in the HB videocounseling condition, who do not have access to local Switch 56 service (anticipated n = 20), will be offered HB speakerphone counseling as an alternative. Based on an earlier pilot study, we anticipate that 1 in 4 families in our 5-state, catchment area will not have access to 56 Switch service. The differential effects of these counseling interventions on outcome will be assessed one week after the 6-session, counseling program, and 6 months following treatment.
The specific objectives of the NIDRR project are to:
The current project is, to our knowledge, the first large-scale, controlled study to use HB computer technology to address the counseling needs of rural, at-risk adolescents with disabilities and their families. We anticipate that the findings of this project will significantly advance our knowledge of the effects of HB videocounseling on: (a) the specific problems identifiedby at-risk teens with epilepsy and their parents, (b) family comfort and satisfaction with HB videoconferencing technology as a counseling medium, (c) attrition, adherence to treatment, and the therapeutic relationship between family members and counselors, and the cost-effectiveness of HB videoconferencing vs. speakerphone, vs. traditional office counseling.
Austin, J. K. (1991). Family adaptation to a child's chronic illness. Annual Review of Nursing Research (Vol.9) (pp. 103-120). NY: Springer.
Glueckauf, R. L. (1996). Home-based, videocounseling for rural at-risk adolescents with epilepsy and their parents: An accessibility and outcomes analysis (H133G60087). National Institute on Disabiility and Rehabilitation Research, USDE.
Glueckauf, R. L., Webb, P. M., Papandria-Long, M., Rasmussen, J. L. Markand, O., & Farlow, M. (1992). The Family and Disability Assessment System: Consistency across judges and measures. Rehabilitation Psychology, 37, 291-304.
Long, M. P., Glueckauf, R. L., Rasmussen, J. L. (in press). Developing family counseling interventions for adults w/ episodic neurological conditions.Rehabilitation Psychology.
TELEHEALTH ARTICLES, BOOKS, JOURNAL, REPORTS
The Comprehensive Self-Help Book online at http://www.cmhc.com/psyhelp
PSYCHWEB: 1,000+ Psychology and Social Science Journal sites: http://www.gasou.edu/p sychweb/resource/journals.htm
SIM Quarterly -- published on the WWW almost quarterly. Available to all interested in using the Internet for medicine. http://www.cybertas.demon.co.uk/simq/home.html
TIE: 3000 Telemedicine abstracts: http://tie.telemedicine.org
TIME--"Heroes of Medicine" 11/3/97-12/29/97. Has an article about NPs and the University of Kansas program in it.
CONFERENCES & EDUCATION
American Telemedicine Association Annual Meeting April, 1998:
community-campus partnerships for health: principles and best practices for healthier communitiesapril 25-28, 1998 Pittsburgh, Pennsylvania to request conference registration materials (due Jan1998), contact:Alisa Holmes, ccph program http://www.atmeda.org
GMDS - German Society of Medical Informatics, Biometry and
Epidemiology: Internet Working Group
"Medicine and the Internet - How to evaluate " Bonn, March 27, 1998
How to Build a Telemedicine Program
May 30 - June 3, 1998 @ Fletcher Allen Health Care, The University of Vermont and The Sheraton Hotel & Conference Center, Burlington, Vermont. For more information contact The University of Vermont at (800) 639-3188 or via e-mail at email@example.com
The Internet Society, 8th International Conference
July 21-24, 1988 in Geneva. The details on the conference are available at: http://www.isoc.org/inet98
Nursing and Health Informatics Conferences
Paying for Telehealth: Regional Workshops
For complete program and registration information point to:
http://www.gmu.edu/departments/chp or Contact: Neal Neuberger, Senior Partner, CPSC, (703) 536-5642 E-mail: firstname.lastname@example.org
Southern Regional Education Board (SREB) electronic campus:
Telemedicine & Distributed Medical Intelligence Conference
Lake Tahoe, CA March 8-10, 1998
Contact: Lori Maiolo 919.816.2695
Hosts: Office of CME East Carolina University School of Medicine and Telemedicine Technologies Company:
Telemedicine: Charting the Future, Forging New Alliances
Telemedicine & Distributed Medical Intelligence Conference
March 8-10, 1998 in Lake Tahoe, CA.
Host: East Carolina University Telemedicine Program.
This conference will explore cutting-edge innovations and changes in the developing global telemedicine environment:
Universal Service Provisions
Free broadcast Wednesday, NOVEMBER 19, from 12:00noon to 1:00pm EST
Healthcare Informatics Telecom Network will present a broadcast on the
Universal Service Provisions.
ORGANIZATION & COMPANIES
If you'd like your organization added to our list for the next newsletter, please send all information to: email@example.com
One source of information are internet discussion lists. These lists provide forums for discussion on a specific topic or interest area. All list names are in quotations followed by the subscription address and subscription commands for the body of the messages
NURHIS-L: International forum to discuss Nursing History
To subscribe send an email:
BODY: SUB NURHIS-L First Name Lastname
subscribtion instruction are available at: http://www.nursing.uconn.edu/nurhis-l.html
INTERPSYCH: The following lists are part of InterPsych, a non-profit
cyberorganization. InterPsych lists are independently headed by their
forum leaders. Similar to a consortium, InterPsych has grown to operate
nearly 50 forums on a diverse range of mental health topics* now serving
over 10,000 members world-wide. More information may be found at:
Health-Care issues for rural & isolated areas
To subscribe send an e-mail:
BODY: SUBSCRIBE RURAL-CARE
"TELEHEALTH" Discussion List To subscribe send email:
BODY: SUBSCRIBE TELEHEALTH YourName
"NETPSY" Psychological Services on the net To subscribe send email:
BODY: SUBSCRIBE NETPSY YourName
"INTA" discussion list for the International Telehealth Nurses
Association, for Nurses and others interested in all aspects of
To subscribe send email:
BODY: Subscribe itna First Name Lastname
"Mental-Health-Worker" Psych Techs with Bachelors and Below
To subscribe send email:
TO: LISTSERV@MAELSTROM.STJOHNS.EDU with this in BODY: SUBSCRIBE Mental-Health-worker Your Full Name
"Poli-Psy" Political Science of Psychology/Psychiatric To subscribe send:
BODY: SUBSCRIBE poli-psy Your Full Name
"Hospital-Downsize" closures and downsizing of psych facilities
To subscribe send email:
BODY: SUBSCRIBE hospital-downsize Your Full Name
APN Jobs are at http://www.nurse.net/jobs
Colorado Psychological Resources is a free service for the public providing information about and referrals to Licenced Mental Health Professionals. Nationwide, Therapists may join our network at any time call 1 (800) WE-GUIDE.
The Centre for Community and Enterprise Networking (C\CEN) of the University College of Cape Breton (UCCB) does research, development and enterprise incubation in the use of Information and Communications Technologies in support of local economic development, particularly in rural areas. C\CEN's would like to offer our work as a possible venue for collaborative or self-funded graduate research; post-doctoral or sabbatical study; or as a beta-test site for appropriate hardware, software or innovative rural informatics applications.
C\CEN has limited on-site research and technical support and office
accommodation, access to current activities and research programs,
Internet access, and a vibrant and creative group of researchers,
program developers and technical support staff. C\CEN also has ongoing
active institutional links with the United Nations; United Kingdom,
South Africa Malaysia, Canada, the US, and technology/development
Anyone with interest or proposals please please contact:
Michael Gurstein, Ph.D.
Director: Centre for Community and Enterprise Networking
University College of Cape Breton, PO Box 5300,
Sydney, NS, CANADA B1P6L2
Tel. 902-562-1055 (h) 902-563-1369 (o) 902-562-0119 (fax)
Discount the cost of wiring and ISP services up to 90% for education
related projects. Check these web sites:
NEXT GENERATION INTERNET (NGI) SOL BAA 98-02 The Next Generation
Internet (NGI) initiative will develop novel network capabilities to
enable a new wave of revolutionary applications. DARPA's role in NGI
will involve: experimental research for advanced network technologies;
and the development of ultra-high speed switching and transmission
technologies that lay the groundwork for terabit per second (Tb/s)
networks. This announcement solicits proposals for these components.
More information is available @:
If you are interested in data storage, referral and security, here is a set of grant/contract RFPs. TITLE: SENSOR TECHNOLOGIES INTEGRATION
LABORATORY -- http://www.wl.wpafb.af.mil/contract/hp.htm
The National Library of Medicine's (NLM) Internet Connection Grant is
designed to encourage US healthcare hospitals, clinics, schools and
research institutions, and professional organizations to connect to the
Want to know more? Want to take advantage?
a) Connect with the NLM at http://www.nlm.nih.gov
b) Choose Extramural Grants
c) Choose Internet Connection for Medical Institutions
d) Look- at the Application cycles Next one is February 1, 1998
e) And either request or download an application form
NLM staff are available to assist you. Take advantage!
Do you have a job opening? Do you need a job in telemedicine? Did you hear about some Grant funding? This section is designed for the various Telehealth opportunities for individuals or organizations. Please send all requests or opportunities to us at: firstname.lastname@example.org
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